Below you will find a list of our press releases, which are available to download, and details of newsletters that we have produced.
You can find details of the articles and papers that DIPEx has published under Papers in the Resources section of each illness or condition.
Current Press Releases
Academic Papers
We only display the current years press releases on this page. To view a list of our previous press releases, please use the link provided. [Previous press releases]
Alternatively, you can look for the press release you require using the search below.
9/11/2007 - Best Help for Stroke Survivor is from the Heart
The experiences of stroke patients can help other patients and their families just as much, if not more, than medical books or doctors surgeries, according to recent research by the University of Stirling.
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29/10/07 - www.YouthHealthTalk.org launches ‘Living life with greater challenges’
Young people with chronic (long-term) medical conditions can read about, or listen to, other teenagers and young adults who have experienced living with illness at www.youthhealthtalk.org, part of the award winning DIPEx patient website based on Oxford University research.
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09/10/07 - Planned caesarean or vaginal birth?
A new website that explores women’s decision-making about birth after a previous caesarean section was launched on Tuesday, 9th October.
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28/08/07 - How relatives cope with intensive care
Personal experiences of intensive care from not only patients but also their friends and family can now be heard online on DIPEx, the award-winning patient website based on Oxford University research.
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24/09/07 - Ordinary people’s experiences of lymphatic cancer available online
People diagnosed with Hodgkin’s or non-Hodgkin’s lymphoma can go online to listen to, or read about, ordinary people’s experiences of the illness.
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28/08/07 - Intensive Care views of family and close friends of ICU patients
Intensive care: new website gives the views of family and close friends of ICU patients
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23/07/07 - Personal experiences of screening for bowel cancer go online
Those considering being screened for bowel cancer can go online to listen to, or read about, ordinary people's experiences of the process.
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16/5/2007 -New Website Provides Personal Insight into Breastfeeding
A new website featuring personal experiences of breastfeeding has gone ‘live’ in time for National Breastfeeding Awareness Week (May 13 - 19).
Dr Kath Ryan, Senior Research Fellow at Bournemouth University recorded the interviews with 49 women and two men from all parts of the UK for the new site - www.dipex.org/breastfeeding. The men featured are partners of women who were interviewed.
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Click on the [download] link to download the whole Paper as a PDF document.
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2007 -Social Science & Medicine 65. 755–770
Positive prevention: Contemporary issues facing HIV positive people negotiating sex in the UK
Damien Ridge, Sue Ziebland, Jane Anderson, Ian Williams, Jonathan Elford
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2007- Journal of Adolescent Health 40, 69-75
Fertility issues: the perceptions and experiences of young men recently diagnosed and treated for cancer.
Chapple A, Salinas M, Ziebland S, McPherson A, Macfarlane A.
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2007- European Journal of Cancer Care 16, 215-221
Patients' perceptions of transrectal prostate biopsy: a qualitative study.
Chapple A, Ziebland S, Brewster S, McPherson A
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2007- Australian Health Consumer 2006
Online review - Learning from personal experiences of health and illness: www.dipex.org
Herxheimer A.
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2007 - Journal of the Malta College of Pharmacy Practice 13; 27-30
Personal experiences of health and illness on the web: A resource for patients, carers and health professionals.
Ryan K, Herxheimer A.
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2006 International Journal of Nursing Studies 43 (4), 389-391
The web – bringing support and health information into the home: the communicative power of qualitative research. (Editorial)
Alexander J, Ziebland S.
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2006 Medical Education: 405-414.
Making sense of qualitative data analysis: an introduction with illustrations from DIPEx (Personal experiences of health and illness).
ziebland S, McPherson A.
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2006 Social Science & Medicine 62 (10): 2577-2590
Gender, cancer experience and internet use:a comparative keyword analysis of interviews and online cancer support groups.
Seale C, Charteris-Black J, Ziebland S.
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2006 Social Science and Medicine 62 (6):1349-59
"Just a bystander?" Men's place in the process of fetal screening and diagnosis'.
Locock L, Alexander J.
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2006 Social Science and Medicine 62: 2246-57
Men's accounts of depression: reconstructing or resisting hegemonic masculinity?
Emslie C, Ridge D, Ziebland S, Hunt K.
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2006 PRO Newsletter 36 (Spring issue):29-30
Communicating patient-reported outcomes to the public: numbers don't work, patients' own words would.
Herxheimer A.
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2006 Patient Education and Counseling 62 (2006) 361-367
The choice is yours? How women with ovarian cancer make sense of treatment choices.
Ziebland S, Evans J, McPherson A.
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2006 Journal of Medical Screening. Vol 13, No 3, p110-114.
Women's information needs about ductal carcinoma in situ before mammographic screening and after diagnosis: a qualitative study.
Prinjha S, Evans J, McPherson A.
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2006 International Journal of Nursing Studies, 43:1011-1022
The specialist palliative care nurse: a qualitative study of the patients' perspective.
Chapple A, Ziebland S, McPherson A.
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2006 Nurse Researcher, 14. 1
Interviewing people with terminal illness: Practical and ethical issues.
Chapple A.
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2006 Family Practice, 23: 624-630
Can I come off the tablets now? A qualitative analysis of heart failure patients' understanding of their medication.
Field K, Ziebland S, McPherson A, Lehman R.
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2006 Journal of Medical Ethics. J Med Ethics; 706-710.
What people close to death say about euthanasia and assisted suicide: a qualitative study.
Chapple A, Ziebland S, McPherson A, Herxheimer A.
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2006 -Family Practice ; 1-8
Minimizing delays in ovarian cancer diagnosis:an expansion of Anderson's model of 'total patient delay'.
Evans J, Ziebland S, McPherson A.
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2006 - Qualitive health research , 16, 8, 1038-1053
"The old me could never have done that ": How people give meaning to recovery following depression.
Ridge D.T. and Ziebland S.
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2005 Family Practice; 22: 435-441.
Many people with epilepsy want to know more: a qualitative study.
Prinjha S, Chapple A, Herxheimer A, McPherson A.
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2005 UK Key Advances in Clinical Practice Series. Aesculapius Medical Press, London: 283–29.
The Effective Management of Breast Cancer, Second edition. A novel intervention aimed at increasing the emotional adjustment of breast cancer patients. In: Leonard R, Polychronis A, Miles A, eds.
McPherson A, Prinjha S, Evans J.
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2005 The Sociolinguistics of Narrative, Amsterdam: John Benjamins; Ch2: 17 – 40.
Narrative as a resource in accounts of the experience of illness.
In: Jennifer Coates, Joanna Thornborrow (Eds).
Cheshire J, Ziebland S.
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2005 BMJ; 331; 1186-9.
The Parents’ Journey: continuing a pregnancy after a diagnosis of Patau’s syndrome.
Locock L, Crawford J, Crawford J.
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2004 BMJ; 328: 564-7.
How the Internet affects patients' experience of cancer: a qualitative study.
Ziebland S, Chapple A, Dumelow C, Evans J, Prinjha S, Rozmovits L.
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2004 BMJ; 328: 1470-1473.
Stigma, shame and blame: a qualitative study of people with lung cancer.
Chapple A, Ziebland S, McPherson A.
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2004 British Journal of General Practice; 54: 25-32.
Qualitative study of men’s perceptions of why treatment delays occur in the UK for those with testicular cancer.
Chapple A, Ziebland S, McPherson A.
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2004 Qualitative Health Research; 14: 187-203.
Expressions of loss of adulthood in the narratives of people with colorectal cancer.
Rozmovits L, Ziebland S.
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2004 Narrative Research in Health and Illness. Blackwell; Ch6: 115 - 131.
The DIPEx project: Collecting personal experiences of
illness and health care: Hurwitz B, Greenhalgh T, Skultans V, eds.
Herxheimer A, Ziebland S.
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2004 Patient Education and Counseling; 53: 57-64.
What do patients with prostate or breast cancer want from an Internet site? A qualitative study of information needs.
Rozmovits L, Ziebland S.
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2004 Journal of Health Services Research and Policy; 9(3): 159-164.
In the absence of evidence who chooses? A qualitative study of patients’ needs after treatment for colorectal cancer. www.rsmpress.co.uk/jhsrp.htm.
Rozmovits L, Rose P, Ziebland S.
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2004 Psycho-Oncology; 13: 654-664.
The decision to have a prosthesis: a qualitative study of
men with testicular cancer.
Chapple A, McPherson A.
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2004 Social Science and Medicine; 59: 1783-1793.
The importance of being expert: how men and women with cancer use the Internet.
Ziebland S.
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2004 Qualitative Health Research; 14 No 8: 1123-1139.
The role of humor for men with testicular cancer.
Chapple A, Ziebland S.
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2004 British Journal of General Practice; 54: 589 -594.
Lung cancer patients’ perceptions of access to financial benefit: a qualitative study.
Chapple A, Ziebland S, McPherson A, Summerton N.
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2004 He@lth Information on the Internet, December; (42): 3-5.
Personal experiences matter: what patients think about hypertension information online. http://www.hioti.org
Sillence E, Briggs, Herxheimer A.
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2003 Journal Royal Society Medicine; 96: 209-10.
DIPEx: Fresh insights for medical practice. Editorial.
Herxheimer A, Ziebland S.
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2003 Cochrane Collaboration Methods Groups Newsletter; 7: 5-6. (June)
Illustrating Cochrane reviews with narrative clips describing patients’ experiences of the interventions.
Herxheimer A, Ziebland S.
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2003 Atenciòn Primaria: 31(6): 386-8.
DIPEx (base de datos de experiencias de pacientes sobre su enfermedad): una propuesta multimedia para compartir experiencias e informaciòn sobre enfermedadas entre pacientes y profesionales sanitarios. (Spanish translation of
updated version Lancet 2000)
Herxheimer A, McPherson A, Miller R, Chapple A, Shepperd S, Ziebland S, Sanz E.
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2003 CERES News; issue 33: 1-3.
Factoring in the patient – a third dimension in trial design.
Herxheimer A.
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2003 Chinese Journal of Evidence Based Medicine
Database of patients' experiences (DIPEx): a multi-media approach to sharing experiences and information.
(Chinese translation of updated version of Lancet 2000)
Herxheimer A, McPherson A, Miller R, Chapple A, Shepperd S, Ziebland S.
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2002 BMJ; 325: 737-9.
Why men with prostate cancer want wider access to Prostate Specific Antigen (PSA) testing: qualitative study.
Chapple A, Ziebland S, Herxheimer A, Shepperd S, Miller R, McPherson A.
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2002 BJU International; 90: 257-64.
Is 'watchful waiting' a real choice for men with prostate cancer? A qualitative study.
Chapple A, Ziebland S, Herxheimer A, McPherson A, Shepperd S, Miller R.
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2002 Sociology of Health & Illness; 24: 820-41.
Prostate cancer: embodied experience and perceptions of masculinity.
Chapple A, Ziebland S.
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2002 British Journal of General Practice; 52: 954. (Nov)
Database of Individual Patients’ Experiences – an update.
McPherson A, Herxheimer A.
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2001 British Journal of General Practice; 51: 770. (Sept )
DIPEx – A Database of Individual Patients’ Experiences.
McPherson A, Herxheimer A.
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2001 Z Allg Med; 77: 323-7.
A Database of Patients' Experiences (DIPEx): Patienten berichten von ihren Krankheitserfahrungen. Über den Aufbau einer Datenbank im Internet. (German translation of updated and abbreviated version of Lancet 2000 paper)
Herxheimer A, McPherson A, Miller R, Chapple A, Shepperd S, Kochen MM, Ziebland S.
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2001 Ricerca e Pratica; 17: 181-9.
Un Database sull’Esperienza dei Patienti (DIPEx): nuove modalità di scambio di esperienze e di informazioni utilizzando
approcci multimediali. (Italian translation of updated
version of Lancet 2000)
Herxheimer A, McPherson A, Miller R, Shepperd S, Ziebland S.
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[Download]
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2001 The Informed Prescriber (Tokyo); 16(9): 86-90.
DIPEX: A new approach in the UK - patients and health professionals are sharing experiences and information by using multimedia. (Japanese translation of updated version of Z Allg Med 2001)
Herxheimer A, McPherson A, Miller R, Chapple A, Shepperd S, Kochen MM, Ziebland S.
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[Download]
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2000 Lancet; 355: 1540-1543. (April)
Database of patients' experiences (DIPEx): a multi-media approach to sharing experiences and information.
Herxheimer A, McPherson A, Miller R, Shepperd S, Yaphe J, Ziebland S.
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2000 Health Expectations; 3(3): 176-181. (Sept)
The use of patients' stories by self-help groups: a survey of voluntary organisations in the UK on the register of the College of Health.
Yaphe J, Rigge M, Herxheimer A, McPherson A, Miller R, Shepperd S, Ziebland S.
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2000 Medical Sociology News; 26(3): 29-31. (December)
DIPEx: a new resource linking narratives with evidence based information.
Ziebland S.
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Did you know?
'Nature and medical science together can do a great deal to help our bodies and minds heal themselves, but the real experiences of others who have been through the same troubles give us the nourishment that sustains us in the meantime. Youth Health Talk feeds a hunger we didn't even know we had.'
Philip Pullman
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